Friday, January 2, 2009

Kinda Sad

I'm a little sad today because they told us that Rielly has chronic lung disease which I guess alot of preemies get. The sad part about it is they said they have had to turn up the oxygen on the ventilator to 60% vs around 30% where he was before the pneumonia thing. They have concluded that he didn't have pneumonia because his lungs still look bad on the xray even after the antibiotics, plus he doesn't have any secretions from his lungs like he would if he had pneumonia. The bases of his lungs have either collapsed or are not getting enough oxygen because they are totally white on the xray. They said if they have to keep turning the ventilator up and they eventually have to get up to 100% on the ventilator, then there is nothing more they will be able to do. It will be up to Rielly whether he gets better or not and Morgan and Austin will have to make a decision on whether they want to continue or withdraw care because it's not good for his brain if his oxygen level is low. I know they have to prepare us for the worst possible case, but I wish they wouldn't tell us these things. I don't want to know all the bad things that can happen, I only want to know what is actually happening with Rielly. They gave him albuterol today to test and see if it helps him. They said it did help him because they were able to turn down the vent settings from 51% to 30% after he received it. It's time for some more prayers.

4 comments:

R. Jeffrey Davis said...

Our prayers are with you and your fam, Cami.

Anonymous said...

Oh Cami...darn it...it's so up and down with the tiny ones isn't it? I'll be thinking of you and add your family and Rielly to our prayers.

tammy said...

I'm sorry. He's in my prayers.

Kirk and Tori said...

Oh no that isn't good at all we will be praying too!